Lyme/Tick Borne Disease/PANS

Lyme/Tick Borne Disease/PANS

Our family has been affected by Tick Borne Disease. After many years of suffering a broad range of symptoms from minor to very major heart and neurological issues, I was finally diagnosed with Lyme, Babesia, and Bartonella in 2013. My tests showed an active infection and was CDC positive, which means that even years after being bit by a tick, I continued to show a positive result that the Centers for Disease Control even acknowledge as a current and active Lyme infection. Because my youngest daughter was suffering similar symptoms, we had her tested and she also tested positive for Lyme and co-infections. We never saw a bite and doctors have told us that I probably passed it to her in utero.

In 2015, my oldest daughter began experiencing unusual seizure like activity, coupled with flu like symptoms. I didn’t find a tick on her at first and didn’t want to jump to that conclusion just because of our experience, so I took her to the ER. While we were in the waiting room, I found an engorged tick on her scalp. The doctor removed it and told us that it was the kind of tick that transmits Rocky Mountain Spotted Fever. She had most of the symptoms for RMSF so she was treated with antibiotics. She is currently symptom free.

After years of treatment, my youngest daughter and I are still trying to reclaim our lives from the clutches of chronic disease. I have endured countless cycles of antibiotics, herbal protocol’s, PICC lines, chest ports and IV antibiotics. Last year, my youngest was additionally diagnosed with PANS/PANDAS – a neurological disease caused by inflammation in the brain from Strep and Lyme bacteria. If you want to learn more about PANS, please click on this link: What is PANS?

Needless to say, because of our experiences, I am passionate about spreading awareness for the prevention of Tick Borne Diseases. I have created a website dedicated to that cause — AboutLyme which also includes blog posts I wrote during the worst years of our Lyme journey. This would be a great resource to learn about Lyme and other vector borne diseases, as well as the personal aspect of their impact.

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